Category Archives: General

General information

Transfers

From the time Cheryl lost her ability to stand, the problem of transferring in and out of the wheelchair became overwhelming.  She didn’t have the strength to use a transfer board to move herself.  KJ had back issues and was unable to lift her, even with a lifting belt.  We were dependent on Cheryl’s ability to stand for many years and without that we found ourselves in compromised positions more than once.  It is difficult to maintain one’s dignity when outsiders are needed for simple tasks like getting in/out of bed or on/off the toilet.

After some trial and error, we settled on a Hoyer lift as our solution to the problem.  We rented a power lift that folded up for a trial period.  Our insurance would not pay for that device so we backed off to a manual lift with a hydraulic pump.  We still have that original lift and use it for traveling.  That is because it fits in our handicapped van without being broken down into pieces.  It also rolls through hotel lobbies and cruise ships relatively easily.

As KJ’s back problems became more severe (ultimately requiring surgery), we investigated a power lift once again. Nothing had changed with our insurance (it would not pay for a power lift) but we made a deal.  Insurance paid the amount they would have paid to replace the manual lift and we paid the difference to get the power lift.  That lift has a larger footprint than the manual lift and is harder to break down into pieces.  However, it does offer major relief for KJ’s back and is well worth the outlay we made.

In our next Blog entry, we will explain the challenges we have faced using our lift in hotels.

Why Did We Create This Blog?

Welcome to our Blog.  We are not professional Bloggers so don’t expect professional writing and editing.  You can expect direct-from-the-heart comments and suggestions.

We are a family (Cheryl and KJ) who has dealt with mobility challenges for more than 2/3 of our married life, the result of Cheryl’s Multiple Sclerosis (MS).  We will be documenting our lessons learned in this Blog with the hope that it will assist other families facing similar challenges.  We look forward to your comments as you share your own experiences with us. Our desire is that through our sharing someone will learn a trick or understand a point that was not clear before.  Traveling with a spouse who is immobile is filled with challenges and many of them are not obvious until an issue has developed.  If we can help just one person avoid a difficult issue while traveling, it will be worth the investment of our time.

Meet Our Team

The principle in this team is the wife, Cheryl, who came down with MS in 1980 when her children were 10 and 7.  Her diagnosis was not confirmed until December, 1990 at the Mayo Clinic in Rochester, MN.  In those days, MS diagnosis was done by eliminating all other possibilities. As a result, diagnosis was imprecise and usually took several years.

Cheryl is a retired secretary and full time housewife.  The other member of this team is KJ, the husband.  He is a retired executive from a multi-national information technology company.  He is also the primary caregiver for Cheryl.

Cheryl has been unable to stand or walk since 2001, confined to a wheelchair since that time.  Her mobility was gradually reduced for the 10 years preceding 2001 so the total time we have dealt with some form of immobility dates back to 1991.