Tag Archives: Hoyer lift

Cruising

We have now been on five Caribbean cruises as a couple.  The first one was before Cheryl developed MS but the other four have been in the past 5 years.  Every cruise has been pleasant and enjoyable with minimal stress.  We feel that cruising is the most wheelchair friendly mode of vacationing.

Royal Caribbean was our choice for a cruise line when we did the first one in the wheelchair. Actually it was really not our choice because we signed up to go with a group of MS patients and caregivers on a Royal Caribbean cruise.  The particular group we joined is based in Florida and is called MS Cruisers. Below is a photo of a small portion of the group on the Allure of the Seas in 2011.  We took a second cruise with MS Cruisers in 2014.  The group offers a chance to share with others dealing with MS in a setting that is very nice and comfortable.IMG_2957

Once we experienced a Royal Caribbean vacation, there has been no desire to move to a different cruise line.  As with so many things in traveling with an MS patient, once we discovered the great service and accommodations offered by Royal Caribbean, we stuck with it.   We have our sixth cruise already booked for early 2016.IMG_3621

All our cruises have been to the Caribbean for two reasons.  First, we love the blue water, white sand beaches, and the people of the Caribbean.  Second, living in Atlanta and traveling only by van, Florida departure ports launching cruises to the Caribbean are the most accessible ones for us.  We have cruised to these islands in the past five years:  Cozumel, Jamaica, Coco Cay and Nassau in the Bahamas, Labadee (Haiti), St. Maartens, St. Thomas, and Grand Cayman.

Royal Caribbean gets an A+ rating from us because of the helpfulness of all their staff, especially for wheelchair bound passengers.  We have traveled on one of their largest ships from the Oasis class (Allure of the Seas) and on smaller ones.  We cruised on Freedom of the Seas (Freedom class) twice and found it very comfortable and plenty large.  Last year we cruised on Explorer of the Seas (the smaller Voyager class).  It was also large enough but wasn’t as well maintained as the previous ships.  We were told that it was heading for dry dock very soon which indicates it was time for refurbishment.  In the future, we will ask when a ship was last in dry dock before booking.

The food and drink on Royal Caribbean is stellar.  We have never received a bad meal in the dining room and have always found the Windjammer buffet for breakfast and lunch to be extremely good.  The food and drink staff is so helpful, accommodating, and friendly plus being entertaining at times.  Entertainment onboard is also excellent.  The musical shows in the theater are first class and we always enjoy the ice show.  There are movies and the casino plus lots of interesting people-watching.

The wheelchair accessible rooms are truly that.  The sleeping area is comfortable and the bed accommodates our lift.  The bathroom is not large but is arranged strategically to provide ease of movement for the chair or the lift.  The stewards for our rooms have also been extremely proficient and accommodating.

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Hotel Issues With Our Lift

As I discussed in the previous post, we travel with a manual Hoyer lift to be able to transfer Cheryl between the wheelchair and the bed or toilet.  The lift remains in one piece so it can be rolled around in the hotels.  We are using bellmen where they are available at the hotels and have had no problem with them handling the lift without damaging it.

The big problem with hotels for the past few years is around the beds.  We noticed that many hotels were beginning to use wood platforms under their beds.  These are boards that are recessed a few inches under the box springs and mattress of the bed and go all away around.  Such boards make the use of the lift impossible because the feet of the lift must slide under the bed so that Cheryl is positioned over the mattress.  A normal bed on a frame with open space between the floor and bed, like we have at home, is the type of bed the Hoyer lifts were designed for.

We have had numerous conversations with hotel management and with hotel chains to understand their rationale for the platforms.  The only reason given to us is that it prevents items from rolling under the bed out of sight and thus left behind by guests.  So the reason for the platforms is convenience for the hotel guests.  Clearly this is a decision made by people who do not understand the challenges of those with mobility issues.

In all our encounters with the platform beds, no hotel has been prepared to temporarily remove the platform for us.  To do this would require platforms that are removable so that the bed frame remains. It would also require staff on hand to do the platform removable.  Hotels can not typically handle both of these needs.

Recently on a trip to Biloxi to the Golden Nugget, we encountered a very dedicated hotel staffer with a creative approach.  We had a king sized bed with 2 box springs under the mattress.  She had the platform removed which took the frame as well, leaving the box springs and mattress sitting directly on the carpet.  Obviously, this allowed no access under the bed for the lift.  However, once the hotel staffer saw the lift and understood our dilemma, she developed a creative solution that worked for us for two nights.  The box springs were moved apart so there was an opening for the lift between them. The mattress remained on top and across the opening.  See the photos below to see the end result. 20150715_171929

Creative solution at one hotel.

Creative solution at one hotel.

This solution worked because the mattress was a good one and was able to bridge the opening while still providing support.

Another glimmer of hope for us is that recently we have been able to find a few hotels who are no longer using the platforms under the beds in their wheelchair accessible rooms.  One of our favorite hotels is Hampton Inn and we can usually find one of them that has a room with the bed on a regular bed frame.  Our hope is that all the hotel chains will at least remove the platforms in all of their wheelchair accessible rooms.

One other option KJ has developed for travel is an adjustment to the Hoyer lift.  In some cases we have found beds on frames but the height above the floor is insufficient for the lift to be pushed under.  He went to Home Depot and bought caster wheels for the front legs of the lift that are not as tall as the regular wheels.  He carries wrenches on trips so that in a few minutes he can swap out the wheels, lowering the lift legs by a couple of inches.  The wheels on the lift are 5″ wheels and the replacement wheels are 3″.  The dis-advantage to the smaller wheels is they are much harder to push on carpet.

Our normal practice now is to contact the hotel we have selected directly before we depart to ask if the bed is on a platform. We frequently make reservations online or through 800 numbers for the chains to get better rates.  The fact remains that only the local hotel staff can assure us the bed is not on a platform. Even with the process we have been burned because the hotel staff really didn’t understand what we were asking when we called them directly.  Or they were just guessing or, worse yet, lying.  I choose to believe it is not the latter.  We have made and cancelled many reservations because we could not be guaranteed a room with the bed on a frame.  It requires persistence and patience to make sure before departure that we will find a room that accommodates our needs. Driving 6, 8, or even 10 hours only to find a room doesn’t work is an instant stress builder, something neither one of us needs.

Transfers

From the time Cheryl lost her ability to stand, the problem of transferring in and out of the wheelchair became overwhelming.  She didn’t have the strength to use a transfer board to move herself.  KJ had back issues and was unable to lift her, even with a lifting belt.  We were dependent on Cheryl’s ability to stand for many years and without that we found ourselves in compromised positions more than once.  It is difficult to maintain one’s dignity when outsiders are needed for simple tasks like getting in/out of bed or on/off the toilet.

After some trial and error, we settled on a Hoyer lift as our solution to the problem.  We rented a power lift that folded up for a trial period.  Our insurance would not pay for that device so we backed off to a manual lift with a hydraulic pump.  We still have that original lift and use it for traveling.  That is because it fits in our handicapped van without being broken down into pieces.  It also rolls through hotel lobbies and cruise ships relatively easily.

As KJ’s back problems became more severe (ultimately requiring surgery), we investigated a power lift once again. Nothing had changed with our insurance (it would not pay for a power lift) but we made a deal.  Insurance paid the amount they would have paid to replace the manual lift and we paid the difference to get the power lift.  That lift has a larger footprint than the manual lift and is harder to break down into pieces.  However, it does offer major relief for KJ’s back and is well worth the outlay we made.

In our next Blog entry, we will explain the challenges we have faced using our lift in hotels.